Today was supposed to be a special day. A day we had been looking forward to for a long time, 100 days in fact. It was Kristen’s 100 days since transplant.
The 100 day mark is considered a standard transplant milestone.
Two of my grandchildren share June 4th as their Birthday. Today we would celebrate Kristen’s accomplishment and the 3rd Birthdays of Jordan and Ellie.
We started the day off with Kristen’s weekly clinic appointment. Her labs were drawn and the doc came in and said her numbers were good and sent us on our way. We were there just short of an hour, which is a record. I was glad as there was much to do this day.
We arrived home and Kristen was a bit worn so she headed up to her room. She got herself organized, put her pajamas on and sat upon her bed to catch the latest on Disney channel. I headed straight to the kitchen to make a Mickey Mouse cake for the kiddies birthday.
There was much talk between two of my daughters as we are planning a double wedding for them on August 18th. Crazy, I know, but they both planned to be married in August. Jokingly, I mentioned that I could never pull off 2 weddings in the same month. If they both were going to get married in August then it would have to be on the same day. The more we joked about it and talked about it, the more we decided that it sounded fun. So a double reception it would be.
We were all busy going about the day’s activities. The phone rang and I could see it was the clinic calling. I was sure they were going to make more adjustments on Kristen’s meds. I picked up the phone expecting to hear Brenda, the nurse practitioner, but instead I heard, “Mrs. Kirton, This is Dr. Meeker.” I immediately replied, “No I don’t want to talk to you, If you are calling it must be bad news.” as to which he replied, “I’m sorry, We have found what we believe to be signs of leukemia cells in Kristen’s blood.”
There you have it…Our big day of celebrating came to a fast halt.
I often talk of the boat us cancer moms are sitting in. Knowing well that someone is going to get thrown off, it could be any one of us and any time. Well today, I was thrown off and I fell hard. I do not know if I have the strength to swim to the shore. I seriously do not know how I can go on. At the moment I am trying to see any glimmer of hope. But I don’t see it. Kristen will have a bone marrow biopsy at the beginning of the week to confirm what we believe has happened. Relapse. Then we will sit with the doctors and discuss our options.
Another heart wrenching day.
Once again I ask you to please
Say a little prayer for her.