It has been a very long 4 days. Many tears shed. I was able to talk with Kristen’s nurse practitioner, Brenda, yesterday. It was confirmed that there are 11% leukemia blasts in her peripheral blood. Her chimerism test from the previous week, also on her peripheral blood, came in at 96% donor. Brenda said she was a bit surprised at the relapse given the high percent of donor on the chimerism test.
Kristen will have a bone marrow biopsy in the morning. We are still hoping she will develop Graft-versus-host disease (GVHD) and this might help fight off the leukemia cells. Brenda said that we would have to wait for the results of the bone marrow biopsy before we could come up with any type of a plan. Hopefully the disease hasn’t progressed too rapidly and we can give her a little time to see if GVHD will kick in. Otherwise, it appears that we are back to square one.
Last November when Kristen relapsed we were told that her only chance for survival was a bone marrow transplant .Here we are back to that same place we were when we started 21 months ago. I really don’t know where we stand. But I know it is not good. Not good at all. I realize that a second relapse after a bone marrow transplant is not a good place to be. I know our options are getting fewer.
I have to remind myself several times a day that this is Kristen we are talking about.
Our Miracle Girl, Our Rockstar, Our Warrior Girl, Our Angel
She has always done things her way. I am sure this new challenge that has been placed in front of her will be met with the same
courage, determination and resilience she has always shown.
And today we are once again
“Hoping for Another Miracle”
We celebrated Kim's Birthday yesterday. Kim is the most independant of all of my 6 children. She always sets goals, makes lists and accomplishes everything on her list. She dearly loves Kristen.
We all love Kim!
Yesterday Kristen wanted to go to the store. This is rare as she usually only wants to stay home. She said she needed paper and a movie. I took her to Kmart as our local Kmart is never busy and I knew I wouldn't run into many germ carrying people. Kristen walked around the store and looked at everything. She loaded up the cart with whatever she wanted. Her favorite aisle is always the school supply aisle. Today, she got her purse and headed to the door. I asked her where she thought she was going and she again replied, "The Store, I need a movie." So off we went again.
I'm pretty sure someone forgot to tell Kristen that she is sick.
Please say a little prayer for our girl