Kristen had a clinic appointment yesterday. I wasn’t sure I would get her out of the house, but as soon as I told her that we weren’t going to sleep there, she walked out of the house willingly. Well, sort of, seems her legs muscles are sore and she can hardly walk. It happens every time after a long stay in the hospital. She is always so excited to be home that she dances around quite a bit. She’s OK for the first day then it hits. For the next few days I carry her wherever she wants to go. I’m getting pretty good at it except I usually need a back-up for up and down the stairs. The clinic appointment went well. Kristen’s blood counts continue to rise. She is still low on magnesium and a couple other things, so the IV fluids will continue. She is on the fluid for 10 hours a day. She has another check-up on Wednesday. It will be day +28 (28 days post transplant) some of her meds will be dropped and others added. I found out yesterday that she will receive 4 lumbar punctures (spinal taps) 2 weeks apart for 8 weeks. This is where they will put chemo in her spine and draw out spinal fluid to check things. When Kristen relapsed in November, she tested positive for leukemia in her spinal fluid. This is mostly a precaution to make sure it is still clear as the other chemo doesn’t make it to there. She really hates these. She doesn’t like being put to sleep and then she is sore for a few days
and usually nausea comes with it.
She’ll get through is just like she gets through everything else.
Kristen continues to amaze everyone. She does things her way, pushing forward, moving mountains, whatever it takes to get back to the place she loves, HOME. And here we are,
getting a taste of normalcy back in our lives. And we both love it.
I am so grateful that our prayers have been answered. We have has many spiritual experiences throughout this past year and a half. We know that Kristen has been blessed and watched over. There has been miracles happen before our very eyes. I am so thankful for the many prayers that have been offered in Kristen's behalf throughout the world. Many different beliefs and religions have been brought together for the sake of one special little girl. It touches my heart to hear of the children that are praying for Kristen. There is nothing like the faith of a child.
Being a tease at the clinic yesterday