Someone needs to check the chemo. There are 24 beds in the Immunocompromised (ICS) Unit. Our unit is equipped with highly sophisticated air filtering and environmental monitoring systems. This is home to the cancer and transplant children. We have been regular guests for the past year and a half. At times the unit is full to capacity, but usually you can find an empty room or two, especially as the weekend nears. This past 3 months, since Kristen’s relapse, the rooms are full. Not an empty room in the house. Not only that, they have opened another pod on the floor just below us which is home to 8 children. The other day they had to open another pod bringing the total downstairs to 12. That makes 36 cancer kids that are presently here. For some unknown reason, Leukemia, both ALL and AML are running rampant through these halls. Not only are new diagnosis on the rise but the number of relapse children that have come back is astounding.
I realize that childhood cancer is considered rare. However, If you happen to live here for any given amount of time, it is anything but rare, it’s life. I also realize that over the past several years childhood cancer has transformed from a death sentence to a treatable disease. As I have walked these halls the past few weeks talking to other parents about their children and what has brought them here, we all have the same concern, “What the heck is going on?” The mother of a relapse ALL little girl asked my last night, “Do you think they are putting water in the chemo?” From my front row seat I am wondering if enough is being done. Where are all these new diagnosis and relapses coming from?
As for Kristen, She is in good spirits. Her numbers appear as though there might be some white cells brewing in the next few days. The doctor came in this morning and said, “I’m amazed at how well she is doing.” That’s my girl! I would expect nothing less from her. She put on her boxing gloves a long time ago and is not about to take them off any time soon. Still waiting to hear from the insurance company concerning our appeal.
I created this blog when my sweet little girl, Kristen, was diagnosed with cancer, for the third time. After fighting for almost 3 years Kristen was called home to that same God who gave her life. One of my favorite quotes comes from Neal A. Maxwell- "Those who "plow in hope" not only understand the law of the harvest but they also understand what growing seasons are all about. True, those with genuine hope may see their proximate circumstances shaken like a kaleidoscope at times, yet with the "Eye of faith" they still see divine design." Kristen blessed lives and continues to do so. Her light continues to shine. As for me, I continue to "plow in hope" knowing well that Kristen is mine for eternity. Families can be together forever!