I created this blog when my sweet little girl, Kristen, was diagnosed with cancer, for the third time. After fighting for almost 3 years Kristen was called home to that same God who gave her life. One of my favorite quotes comes from Neal A. Maxwell- "Those who "plow in hope" not only understand the law of the harvest but they also understand what growing seasons are all about. True, those with genuine hope may see their proximate circumstances shaken like a kaleidoscope at times, yet with the "Eye of faith" they still see divine design." Kristen blessed lives and continues to do so. Her light continues to shine. As for me, I continue to "plow in hope" knowing well that Kristen is mine for eternity. Families can be together forever!

Thursday, January 14, 2010

Feeling Better



It's amazing what 2 units of blood will do. This girl has seriously figured out how to dance in her bed. When we arrived on Monday Kristen did indeed need blood. The next day she received platelets. She still has an ANC, which normally would be a good thing, but the sooner it hits 0 the sooner it will start to come up and the sooner we can go home. From what I am hearing she is ready for the bone marrow transplant. We are just waiting on insurance. The clinic filed an appeal so we are once again waiting for a reply. Once they get the approval it should take about a week to two weeks to do some work ups on Kristen and her brother. A quick update on Kristen's donor. I have 6 children so the chances of Kristen having a sibling match were good. My other 3 daughters were the first ones here to be tested as each of them wanted to be the one to save their sister. Their tests all came back negative. They were all pretty sad. Next my youngest son, Ryan, made it in for his test and after waiting 2 weeks he was also negative. We had one more shot. My oldest son, Rick, was the last one to get tested, he worked late and always arrived after the lab had closed.
We had decided that the chances of him mataching were slim. I had pretty much given up. After waiting another 2 weeks for his test results... we had a match! The interesting thing about all this is that my two youngest children match each other, 2 of my daughters match each other and Kristen and Rick are a match. Hopefully we will never need it but it is comforting to know that everyone has a match. Rick is excited to help Kristen. We learned a little about the procedure, they will put Rick to sleep and take several vials of bone marrow from his hip bones. He will be uncomfortable for a few days. The marrow will be put into Kristen's blood stream through her central line. Before the transplant takes place, Kristen will receive intense chemo-therapy for 5 days to kill off all her marrow before replacing it with her brothers. We have been warned of the many side effects that will come with it. For some reason bone marrow transplants seem to be more toxic for children with down syndrome. I know the preparations for the transplant and the days following will be difficult for Kristen. I have to remind myself often that Kristen is a fighter. She has already come a long way and proven many times that miracles do happen.

Kristen and her brother Rick last Valentine's Day

15 comments:

The VW's said...

Glad to hear that she is feeling better! What a blessing that one of her siblings matched her and also that all your children have a match!

Our friend's son had a bone marrow transplant using his brother's, who matched him. Everything went great for them and he is doing wonderful 3 years later.....I pray that your angel has the same great outcome!

Keep fighting Kristen! You are such an inspiration! HUGS!!!

ABandCsMom said...

Happy to see her smiling face! Even happier that she has a match. We will be praying for a wonderful outcome. Also, praying for your son as he undergoes his part. I've heard it's really quite painful for the donor. Praying..praying..praying.

Nicki Swilor said...

Kristen's picture made my day! She is so cute. Praying that the BMT will be approved soon. That's really cool that all your kids have a sibling match. God is amazing!

Cammie Heflin said...

I love seeing her smile!!!

Mandy said...

Praying for your sweet daughter :)
What a blessing that each sibling has a match!

Tina said...

Lovely to see Kristin's beautiful smile back on her face...I know challenging times ahead, but the outcome is going to be just so worth it. Will be praying for kristin as well as Rick, what a miracle that she has found her match. kristin has so much love around her, the outcome can only be good! Stay positive :)

Peter Olson said...

Love that smile!
We will pray for Rick (pain free and a successful collection) and Kristen (successful engraftment & return to a New Normal life)
May God Bless You All!

stephanie said...

This gave me goosebumps! Thank goodness for a match! I'm still in complete wonder about the insurance issue. Unbelievable.
But I love that smile on Kristen's face.

Jeana said...

So glad to see her smiling, what awesome kids you have, and how wonderful that she has a match. Prayers that you will be home soon.

scrappy quilter said...

Thanks for stopping by my blog and leaving such a nice comment. If you ever need help making a quilt, I'll be there to help.

Glad to hear your daughter is feeling better. She will be in my prayers. Hugs

Monica said...

WONDERFUL! Oh she looks so much better! I'll be sending her a little something by mail very soon!

SSBenjamins said...

AMAZING, out of your 4 other children, if I am counting correctly the one is a match, What a blessing that one of the kids will match your sweet girl. Kristen is a fighter, I really truly am amazed at how Heavenly Father's choice spirits continue to fight NO matter the challenge, Your kids are awesome, they should be commended and know how much admiration I have for them. Kristen LOOKS great. She is such a beauty.

Heather said...

Look at that smile.she is amazing.And talk about amazing ... all those matches... for each other.Wow,i sure do know how incredible that is.

Praying for the insurance stuff to get worked out fast.Who needs that headache at this point?Seriously.

Mostly we pray for all of you.For your amazing fighter girl.She never ceases to amaze.

memorysdaughter said...

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Angi said...

Happy to see she was having a good day! Praying her Bone Marrow Transplant is approved QUICKLY and while she is doing well!