It's been a long week. We left home on Tuesday in route to the hospital for our last round of chemo! Yeah! We stopped at Kmart so Kristen could choose a new movie and whatever else she wanted to bring to the hospital. This was only like the 2nd time she has been in a store since last August. She was thrilled to push the cart up and down the aisles. First she saw a yellow purse and she picked it up and put it into the cart. Anytime she sees a yellow purse she wants to buy it. Next we came to the toy aisle. She was looking at the Hannah Montana stuff. She soon saw a High School Musical doll that came with a microphone. Kristen loves microphones so I knew this would be a keeper. Next we headed to the school aisle where she picked up some markers and of course, post its. She loves those! Soon we came to the movie aisle and she wanted High School Musical 3 and Beverly Hills Chihuahua. So 20 minutes and 90 bucks later we were back in the car headed to the hospital. We arrived at the great PCMC around 1 and after a few hours of fluids, the chemo started. I was told it would be intense. Kristen is getting high dose Cytarabine also known as Ara-C. She has received this with all 5 of her rounds, but in different doses. She has had her lifetime limit of Daunorubicine, because it causes permanent heart damage, so there is a limit, so this time they are giving her Clorfarabine. This is usually used in patients that have Acute Lymphocytic Leukemia (ALL) and who are not in remission after the first 30 days. Well Kristen has Acute Myelogenous Leukemia (AML), but since she has had her limit on the Dauno, and she is allergic to L-Asparaginase they had to bring in something to finish up her treatment. Dr. Fluechel felt good about the Clofarabine so that is what she is getting. I had do do some research on the drug because even Dr. Afifi (she is the chemo doc on this week) hasn't used the drug for 6 months and even most of the nurses say they hardly ever use it. I was concerned even more when I found out that every 15 minutes of the 2 hours that the drug is going in they have to check her vitals, and she has to be pre-treated with benadryl, tylenol and hydro-crotisome. Kristen actually did well so far. She got her last dose about an hour ago and the only problem so far is a red rash from head to toe. She has been on benadryl every 4 hours for about the last 48 hours. I wonder how she manages to stay awake. In about 15 minutes the last dose of Ara-C will go in!!!!! Then we start to play the waiting game. We wait for her counts to drop, usually 10 to 14 days and then we wait for the counts to go up, another 10 to 20 days, then.....drum roll......WE GET TO GO HOME!!!! In a day or two the chemo will really start to catch up with Kristen and I describe it like a being hit by a truck, a large one! We hope that she won't get an infection or a fever. She has already had a decrease in appetite. She continues to be a little fighter! She amazes me every day! She just called me a stinker! I think she wants some attention, so I will go now. Thanks to everyone that is praying for her and thinking about her and visiting her. Say a little prayer for her!
I created this blog when my sweet little girl, Kristen, was diagnosed with cancer, for the third time. After fighting for almost 3 years Kristen was called home to that same God who gave her life. One of my favorite quotes comes from Neal A. Maxwell- "Those who "plow in hope" not only understand the law of the harvest but they also understand what growing seasons are all about. True, those with genuine hope may see their proximate circumstances shaken like a kaleidoscope at times, yet with the "Eye of faith" they still see divine design." Kristen blessed lives and continues to do so. Her light continues to shine. As for me, I continue to "plow in hope" knowing well that Kristen is mine for eternity. Families can be together forever!